Families of Spinal Muscular Atrophy

Contact details for Families of Spinal Muscular Atrophy

Logo of the Families of Spinal Muscular Atrophy

Name: Families of Spinal Muscular Atrophy
  (FSMA)
  United States
Website: www.fsma.org

About Families of Spinal Muscular Atrophy - FSMA

A motor neuron disease, Spinal Muscular Dystrophy is a condition which affect muscles throughout the body. The proximal muscles closest to the trunk of the body are often the most affected (e.g. back hips and shoulders). This may include weakness in legs; feeding and swallowing may also be affected. Patients with Spinal Muscular Atrophy are often grouped into one of four categories depending on where motor function is affected.

Spinal Muscular Atrophy (SMA) is one of the more prevalent 'rare disorders'.

Families of Spinal Muscular Atrophy is the largest international non-profit organization dedicated solely to:

  • Eradicating spinal muscular atrophy (SMA) by promoting and supporting research
  • Helping families cope with SMA through informational programs and support
  • Educating the public and professional community about SMA

Organizations:

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